My Liver Cancer Blog
my first blog, a way for me to process my experience of being diagnosed with cholangiocarcinoma
about
I am a professor at a Canadian university. I’m married, have close relationships with my family, love my 2 dogs, love travel, and enjoy hiking (but day hikes only – not really into the hut-to-hut thing). I really hope I can get through this and do some major hikes again in the future. Thank god I also love reading novels (literary prize winners, but also espionage, detective, and sometimes Sci-fi). And thank god I live in an era of excellent tv. And thank god I love writing. There are many things I can still do that I love, even having cancer and being more home-bound than I would like to be.
If you’re new, I recommend starting with How I Found Out.
recent posts
Category: Uncategorized
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Wicked Thoughts: On the way home from the 3rd Zeno infusion yesterday, I tested myself. If given the choice, are there still people in the world that I would give my cancer to if some little demon made the offer? Yup, totally. People I know? Yup, sorry to say, but totally. This made me and…
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That a well known oncologist, who earlier in the day had given a fascinating scientific presentation, taught us some Bollywood moves at the final dinner gives you a little bit of a feel for what this conference was like. (Link below is to a video of us doing our best to Sapphire, the song by…
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So, I’ve been very reluctant to share the precise information about how much Zeno costs. I think this reluctance comes from the upper middle class WASP in me: don’t talk about money, don’t talk about how much you paid for something, don’t talk about what you can and cannot afford. I’m embarrassed at how much…
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I received my first infusion of zenocutuzumab (Zeno) this week. It all went well — no side effects (knock on wood) except for some minor gastrointestinal upset — and this week I have felt fine. Better than fine, really — the closest I’ve felt to “normal” in a year. For example, yesterday I went for…
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So, I received the report about CT scan #4, which was done on March 29, and I think the take-home message is that the tumour size is stable and has not significantly changed since the previous scan, which was done Feb. 22. (In fact we didn’t even really need to do scan #4, but did…
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Apologies for the long silence. Not too much has been happening on the health/health care front. I have continued receiving immunotherapy (durvalumab) once/month at the beginning of the month (Jan – March), but, if all goes according to plan, on April 7 I will start receiving Zeno every 2 weeks. The three people I’ve been…
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I’ll keep this short – the most recent scan (Feb. 22, 2026) shows more tumor shrinkage. In August 2025, the tumor was 10.4 cm x 8 cm, in early November it was 9.7 cm x 7 cm, and now it is 7.8 cm x 5.2 cm. After the second scan on Nov. 3, and looking…
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I don’t even know how to write this post. But if I think about it too much, I’ll never write it, let alone post it. My husband got me an earlier CT scan. It had been scheduled for March 12, and I had emailed my oncologist, emailed his assistant, spoke with the triage nurse, and…
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I feel like I am doing at least two ways. The first way is that I feel quite well. My last round of chemotherapy was December 22, and it feels good to be off it. I’m sleeping better and I have more energy. Now that I am off chemotherapy I realize I wasn’t aware of…
My Liver Cancer Blog 