My Liver Cancer Blog

my first blog, a way for me to process my experience of being diagnosed with cholangiocarcinoma

I am a professor at a Canadian university. I’m married, have close relationships with my family, love my 2 dogs, love travel, and enjoy hiking (but day hikes only – not really into the hut-to-hut thing). I really hope I can get through this and do some major hikes again in the future. Thank god I also love reading novels (literary prize winners, but also espionage, detective, and sometimes Sci-fi). And thank god I live in an era of excellent tv. And thank god I love writing. There are many things I can still do that I love, even having cancer and being more home-bound than I would like to be.

If you’re new, I recommend starting with How I Found Out.

Feeling a little low today, though maybe only because I didn’t get enough sleep. Everything seems worse with not enough sleep. My husband didn’t sleep either. We’re both nervous.

And not enough sleep because tomorrow night I’m getting my first CT scan since starting chemo/immunotherapy. I’m in the middle of the third cycle, so 5 doses so far, which is a little early. Usually they wait until the completion of the third cycle.

The scan will show if the chemo/immunotherapy is shrinking the tumor or having no effect. It could also show spread to other areas (or not). It’s a scan of chest/abdomen/pelvis, so trying to catch all possible areas where it might spread.

My mother (trained as a social worker) has suggested that for every negative, pessimistic thought I have about this I try to counter it with at least one positive thought. So, on the one hand I’m worried that the cis/gem/durva is having no impact (I’ve read too many posts recently on the online support groups about this regimen not working for people). On the other hand, (1) it’s early — sometimes the shrinking isn’t seen until after cycle 3 or 4, and (2) I’ve had more energy recently, and my liver function indicators have improved somewhat over the last couple of weeks (still not in the normal zone), both of which could be signs the tumor is shrinking.

Knock on wood and wish on a star for me.

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2 responses to “Feeling nervous”

  1. Andrew Lewis Avatar
    Andrew Lewis

    I can see a lot of stars from where I sit right now. Hanging wishes on each and every one.

    Liked by 1 person

  2. Christina Dizon Avatar

    that’s great advice from your mom.

    Liked by 1 person

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