My Liver Cancer Blog

my first blog, a way for me to process my experience of being diagnosed with cholangiocarcinoma

I am a professor at a Canadian university. I’m married, have close relationships with my family, love my 2 dogs, love travel, and enjoy hiking (but day hikes only – not really into the hut-to-hut thing). I really hope I can get through this and do some major hikes again in the future. Thank god I also love reading novels (literary prize winners, but also espionage, detective, and sometimes Sci-fi). And thank god I live in an era of excellent tv. And thank god I love writing. There are many things I can still do that I love, even having cancer and being more home-bound than I would like to be.

If you’re new, I recommend starting with How I Found Out.

That is, the first scan since starting chemo/immunotherapy. It showed no decrease in size for the main tumor in my liver – still 10.4 cm. But a smaller tumor decreased by almost 1/3, from 3.2 cm to 2.4 cm. And no spread to anywhere else in chest, pelvis, or abdomen. That last bit is excellent news.

I’ll admit I’m disappointed. I was really hoping to see that large tumor shrink. That it hasn’t makes me fearful for the future. I worry that if it shrinks, it won’t shrink enough for surgery or histotripsy (which is essentially using powerful ultrasound waves to pulverize a tumor). I worry it won’t shrink at all. I want to tell it to get the fuck going – no time to waste, time to start disappearing.

I’m trying to keep rational, positive thoughts front of mind. First, this scan was early – only 2 1/2 cycles in. Lots of patients don’t see tumor size decrease until after cycle 4. Second, if the chemo can shrink the smaller tumor, hopefully that means it can also shrink the larger one. Third, I continue to feel better, more energetic, and my bloodwork suggests my liver function is improving — so maybe tumor shrinkage is not far behind. Fourth, chemo targets rapidly dividing cells, so the speed of its impact depends on how quickly cancer cells divide – some aggressive tumors divide very quickly, paradoxically making them more vulnerable to chemo. Less aggressive, slower-dividing cancers are impacted more slowly by chemo. So maybe my large tumor is a slow cell-divider.

This last thought is basically my own speculative folk theory about my tumor. I wish I could ask it: “Hey tumor, are you a lazy, slow cell-division tumor? More of a Type B personality?”

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