My Liver Cancer Blog

my first blog, a way for me to process my experience of being diagnosed with cholangiocarcinoma

I am a professor at a Canadian university. I’m married, have close relationships with my family, love my 2 dogs, love travel, and enjoy hiking (but day hikes only – not really into the hut-to-hut thing). I really hope I can get through this and do some major hikes again in the future. Thank god I also love reading novels (literary prize winners, but also espionage, detective, and sometimes Sci-fi). And thank god I live in an era of excellent tv. And thank god I love writing. There are many things I can still do that I love, even having cancer and being more home-bound than I would like to be.

If you’re new, I recommend starting with How I Found Out.

The CTV News Interview

Here is the link to the CTV News story about my situation. I believe the video portion cannot be viewed outside of Canada, so here is the video. Also, I will be participating in a press conference tomorrow, October 15 at 1:30, at Queens Park, with a few other cancer patients whose applications to the…

Government Duplicity

So, if I turn out to be wrong about what I say below, I will post a retraction/apology. We’ll see… As you know, I’ve applied twice to Ontario’s Case-by-Case Review Program to get funding for my zenocutuzumab treatment. And I’ve been denied both times. The first time, the reason provided was that the drug was…

Self-Advocacy

is often having the people who love you fight for you. First I just want to say thank you. Thank you, thank you, thank you. I’ve never felt so grateful and, frankly, just blown away by the number of people who are fighting for me in so many ways. I can’t help but feel that…